Who are we? What Are We? Where Are We Going? Epilepsy is Real! It Does Exist!

This is the start of my Blog. Epilepsy is real and does exist. More for next time.

 

26 thoughts on “Who are we? What Are We? Where Are We Going? Epilepsy is Real! It Does Exist!

  1. Alex!
    This is terrific. Great design focus and perspective
    Your wisdom is much needed in the blog world.
    This can go on to Twitter too.
    Penny

  2. Epilepsy is real. It does exist. It effects friends and family members as well. Most of all though; it effects the person who has epilepsy and the person who has epilepsy is aware and can communicate with his or her friend and family members.

    • Alex, i am in the room next to you, we share a bathroom with the anoying individuals known as paul and domoniqe. I can’t imagine what it is like to have epilepsy nor can I imagine what your’e going through i am not going to lie and say i do. However i can tell you to keep your head up, i like what your doing in the sense that you have tried to educate the public and have continued to do so i want to tell you like you have told me so many times in the past that it’s not your fault and that everything will look up sooner than what you expect

  3. Epilepsy is real. It does exist. It effects friends and family members as well. Most of all though; it effects the person who has epilepsy and the person who has epilepsy is aware and can communicate with his or her friend and family members.

  4. Alex, This is terrific. I’m going to share this with everyone at the Epilepsy Foundation and I’m sure they will pass it along.

  5. Alex – This is great work! I admire your passion and courage in sharing your insight regarding epilepsy. I look forward to reading future comments.

  6. Alex, we need to find a graphic designer who can help with this.. a SIMPLE symbol that shows the power of broken electricity made whole..do any of your friends in Lansing have a company or person you could consult with???

  7. Alex, you inspire me. I love reading your blog. I’m not much of a blogger but then I have little to say that anyone would want to read. You on the other hand have so much to say and offer that improves the day of anyone reading your blog. Keep it up. I’m following it!
    Beth Wayne

  8. Hi Alex,
    I love your blog — your story is so beautifully written. I would love to hear more about your day-to-day thoughts and feelings AND your progress. I continue to be blown away by how much progress you are making – every time I see you – your progress exceeds any expectations I had. I am sure it is incredibly hard work – much harder than any of us can imagine. It’s such a blessing and inspiration to see how you continue to push forward. Keep pushing!
    I will probably be coming to Michigan in the next few months so I look forward to seeing you soon!
    love,
    mary schneider

  9. Alex, so great to see so many people inspired by you and your message! Thank you for your boldness and transparency to allow others to learn from your journey. Happy Thanksgiving!
    -Danielle

  10. Alex, I just found you. Hey, are you from Lansing, MI? I’m in MI, too, if you are. I am so interested in your blog. You might want to check out mine, “Brainstorms: How Epilepsy and Writing Connect” at maggiemendus.wordpress.com. It would be great to be in touch. Meanwhile, thank you for what you do. We need to educate the public about this epilepsy we unfortunately know too well. Perhaps you’d be interested in the book of poetry I wrote about living with E. Information is on my blog.

  11. Besides Epilepsy in itself as a horrible illness there are other horrible issues affecting our world as I compose this.

    For instance: sexual assult and child abuse are two issues that affect our world about which we need to be aware.

    There is a long list horrific acts that affect us.

    Probably not enough to fit into this blog alone.

    Though I do seize hope,

    Alexander Warren Heldman

  12. There are so many different illnesses and diseases in this world.

    Epilepsy is an often misunderstood and rarely spoken about illness, however; there are many other diseases in our natural world.

    When reading this blog I urge you to take into account epilepsy because it so rarely spoken about about but never forget the other harmful things/diseases in your world.

    The list is simply to long.

    Of course cancer is an often spoken about disease because it has affected so many and there is no cure as I compose this.

    But there are rare diseases too that bring tears to my eyes.

    ALS, colitis, Alzheimer’s and multiple sclerosis are four that come to mind.

    Alas, there are so many more.

    Our natural world has a long way to go in curing itself.

    Don’t give up… don’t ever give up.

    Seize Hope,

    Alexander Warren Heldman

  13. Wednesday, December 15, 2015

    Holidays are full of (fill in the blank) I will go with stress.

    Nevertheless, as someone diagnosed with epilepsy it is an added headache.

    Seeing friends and family is difficult enough.

    So while everyone is doing their (whatever they want to do) beneath the miseltoe, I recommend saying thanks but no thanks to egg nog (because it can interfer with interfer anti-seizure medications, with the assumption that there is alcohol in it).

    Cancer is an epidemic. AIDS is epidemic. And, finally, epilepsy is an epidemic.

    I urge you to ask your loved ones to donated to http://www.cureepilepsy.org so that one day there will one day, in fact be a cure for epilepsy. It is not enough to live with epilepsy as a disease. Cancer and and AIDS have millions upon millions of dollars being pured into research for a cure. People with cancer or AIDS do not simply accept there disease as is and continue on with life. They fight it! And they have an enormous backing network to eventually find a cure. Sadly, that is nohappy t the same for epilepsy. We as epileptics need to both fight the disease tooth and nail and raise $ to find a cure. Come on people. We can do this!

    Happy Holidays,

    Alexander Warren Heldman

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